About Me – Alfie Perry
My name is Alfie Perry, and I am 16 years old. I live with Costello Syndrome, alongside Autism Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD), Avoidant/Restrictive Food Intake Disorder (ARFID), Gastroparesis, mild to moderate S-shaped scoliosis, and a Growth Hormone Deficiency.
Because of my ARFID and low oral intake, I am currently partially fed through a MIC-KEY Gastrostomy (PEG). Although I face a number of medical and developmental challenges, I try not to let them define who I am or what I can achieve.
I have many interests and hobbies. I am a passionate football fan, supporting both Manchester United and Port Talbot Town. I am also very interested in history, particularly the World Wars and the Chernobyl disaster. I have a strong interest in trains and railways, as well as healthcare and medicine.
I am proud of the things I have already achieved. I am a member of the Neath Port Talbot Youth Council, where I have the opportunity to represent young people and have my voice heard. I will also be starting a Level 1 Gateway Health & Social Care course at Afan College, which is an important step towards developing my knowledge and exploring my future interests.
Academically, I am particularly proud of my progress in GCSE English Language, where I have achieved a predicted Grade B/C, despite having learning difficulties. This achievement means a lot to me because it shows how hard work, determination and perseverance can make a difference.
Living with Costello Syndrome and my other conditions has not always been easy, but I am proud of how far I have come. I believe that having a disability, medical condition or learning difficulty should never automatically put a limit on someone’s ambitions.
My experiences have taught me to be resilient, keep trying and believe in myself. I hope that by sharing my story, I can show other people with Costello Syndrome, disabilities, medical conditions or additional needs that they can achieve great things too.
My conditions are a part of me, but they do not define me.