Welcome

About our group

We’re a parent to parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to
better understanding of Costello Syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may surprise you.

Our aim is to gain a better understanding of Costello Syndrome and to identify the best practices in treatment for our children. But most  importantly we  provide a support network through which families can share their own experiences and support each other through mutual understanding and experiences.