About Us

We’re a parent to parent support group that provides information and support about Costello syndrome to parents and health providers around the world.

Our aim is to gain a to better understanding of Costello syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site…”don’t stop asking questions!” The answers may surprise you.

Support Costello Kids

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We have been holding conferences since 1999. Our next conference will be held on 23rd October 2019.

2019 UK Costello and CFC conference
2019 UK Costello and CFC conference

The UK Costello and CFC syndrome conference is to be

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