A rare syndrome characterized by multiple congenital anomalies including dysmorphic craniofacial features, cardiac defects, ectodermal and musculoskeletal anomalies, failure to thrive and developmental delay, and cancer.
We provide information about Costello syndrome and support to parents and health providers around the world. Most importantly we provide a global support network.
To gain a better understanding of Costello syndrome and to identify the best practices in treatment for our children. Whatever you learn from this site.. "....don't stop asking questions!" The answers may surprise you.
Our aim is to gain a to better understanding of Costello syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site…”don’t stop asking questions!” The answers may surprise you.
We have been holding conferences since 1999. Our next conference will be held on 23rd October 2019.
