main-logo CostelloKids - A UK Registered charity -
main-logo CostelloKids - A UK Registered charity -
  • Parent Resources
    • 2026 calendar
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      • About CS - Short Video
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    • The Cezar Trifan Children’s Foundation
  • Families
      • Ace
      • Albie James
      • Alex
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      • Clay
      • Daniell
      • Dario
      • David
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      • Hanalei
      • Haylie
      • Helaina
      • Isla
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      • Jalasa
      • James
      • Jane
      • Jaylon
      • Jenna
      • Kati
      • Kelsi
      • Kevin-Austin
      • Kiley
      • Logan
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      • Max
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      • Rachel
      • Regina
      • Thorin
      • Samson
      • Selin
      • Shane
      • Ulysses
      • Valentina
      • Vera
      • Westin
  • Publications
        • Publications 2003-2004
        • Publications 2005-2006
        • Publications 2007-2008
        • Publications 2009-2010
        • Publications 2011-2012
        • Publications 2013-2014
        • Publications 2015-2016
        • Anesthetic publications
        • Behaviour and learning publications
        • Cancer & Screening publications
        • Cardiac publications
        • Chondroitin publications
        • Dermatology publications
        • Dystonia publications
        • Growth hormone publications
        • Musculoskeletal publications
        • Neurological and vision publications
        • Other Publications
        • Phenotype publications
        • Sleep Issues
  • Stories
    • Cooper’s Story
    • Hanalei’s Story
    • Helaina’s Story
    • Jalisa’s story
    • Kiley’s Story
    • Michael’s Story
    • Selin’s Story
    • An interview with Kristin
    • An interview with Erin
    • Meet Jill Taylor
    • Meet Laure Messier - French
    • Meet Laure Messier - English
  • Conference
    • UK Conferences
      • 2025 UK CS & CFC conference
      • 2023 UK CS & CFC conference
      • 2019 UK CS & CFC conference
      • 2017 UK CS & CFC conference
      • 2015 UK CS & CFC family conference
    • USA Conferences
      • 2025 USA conference
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      • 2013 USA conference
      • 2011 USA conference
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      • 2003 USA conference
      • 2001 Canada conference
      • 1999 USA conference
  • FAQs
  • Contact Us
    • Join the support group
    • Contact the International Support group
    • Contact the Australian group
    • Contact the USA group

CostelloKids

Supporting Costello Syndrome since 1996

International Costello Syndrome websites

  • Costello Syndrome Family Network (USA)
  • French Costello & CFC syndrome Website
  • Italian Costello Syndrome Website

Related syndrome support

  • CFC International
  • RASopathies Network
  • Neurofibromatosis, Inc – USA
  • Neurofibromatosis, Inc. California – USA
  • Noonan Syndrome Association – USA
  • The Children’s Tumor Foundation – USA
  • The Neuro Foundation – UK
  • The Noonan Syndrome Association – UK

Support Organisations

Family Blogs

  • le syndrome de costello
  • ulysses et moi sucre de pasteque
  • Life With Bobean! Living with Costello Syndrome
  • Vera de Zwarte’s website
  • Igor – Costelinho Do Norte (0n Facebook)
  • Was this in the plan????
  • Me and My Son, Joey
  • Ourprincessnicola
  • Living in invisible cities
  • lilyinthepink
  • westinthomas
  • zaneleland

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