CostelloKids – A UK Registered charity –
CostelloKids – A UK Registered charity –
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  • Parent Resources
    • About Costello syndrome
    • About CostelloKids
    • Diagnostic Guidelines
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  • Families
      • Ace
      • Albie James
      • Alex
      • Ali
      • Arden
      • Brenan
      • Brett
      • Bruno
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      • Hanalei
      • Haylie
      • Helaina
      • Isla
      • Ivy
      • Jalasa
      • James
      • Jane
      • Jasper
      • Jaylon
      • Jenna
      • Kati
      • Kelsi
      • Kevin-Austin
      • Kiley
      • Logan
      • Lucy
      • Max
      • Priscilla
      • Rachel
      • Regina
      • Thorin
      • Samson
      • Selin
      • Shane
      • Ulysses
      • Valentina
      • Vera
      • Westin
  • Conferences
    • 1999 Conference in USA
    • 2001 Conference in USA
    • 2005 Conference USA
    • 2007 Conference USA
    • 2009 Conference USA
    • 2003 Conference USA
    • 2011 Conference USA
    • 2015 Conference USA
    • 2017 Conference USA
    • 2013 Conference UK
    • 2015 Conference UK
    • 2017 Conference UK
    • 2019 Conference USA
    • 2019 Conference UK
  • Publications
        • Publications 2003-2004
        • Publications 2005-2006
        • Publications 2007-2008
        • Publications 2009-2010
        • Publications 2011-2012
        • Publications 2013-2014
        • Publications 2015-2016
        • Anesthetic publications
        • Behaviour and learning publications
        • Cancer & Screening publications
        • Cardiac publications
        • Chondroitin publications
        • Dermatology publications
        • Dystonia publications
        • Growth hormone publications
        • Musculoskeletal publications
        • Neurological and vision publications
        • Other Publications
        • Phenotype publications
        • Sleep Issues
  • Stories
    • Cooper’s Story
    • Hanalei’s Story
    • Helaina’s Story
    • Jalisa’s story
    • Kiley’s Story
    • Michael’s Story
    • Selin’s Story
    • An interview with Kristin
    • An interview with Erin
    • Meet Jill Taylor
    • Meet Laure Messier - French
    • Meet Laure Messier - English
  • FAQs
  • Contact Us
    • Join the support group
    • Contact the UK Support group
    • Contact the Australian group
    • Contact the USA group
    • Costello / CFC family conference

CostelloKids

Supporting Costello syndrome since 1996

International Costello Syndrome websites

  • Costello Syndrome Family Network (USA)
  • French Costello & CFC syndrome Website
  • Italian Costello Syndrome Website

Related syndrome support

  • CFC International
  • RASopathies Network
  • Neurofibromatosis, Inc – USA
  • Neurofibromatosis, Inc. California – USA
  • Noonan Syndrome Association – USA
  • The Children’s Tumor Foundation – USA
  • The Neuro Foundation – UK
  • The Noonan Syndrome Association – UK

Support Organisations

Family Blogs

  • le syndrome de costello
  • ulysses et moi sucre de pasteque
  • Life With Bobean! Living with Costello Syndrome
  • Vera de Zwarte’s website
  • Igor – Costelinho Do Norte (0n Facebook)
  • Was this in the plan????
  • Me and My Son, Joey
  • Ourprincessnicola
  • Living in invisible cities
  • lilyinthepink
  • westinthomas
  • zaneleland

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