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What is the role of support groups to help Costello syndrome families?

What is the role of support groups to help Costello syndrome families?

Are there CS support groups outside of the US? How large are they? Where do they meet?

Does the Costello syndrome website have a library of web links and articles?

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International Costello Syndrome websites

Costello Syndrome Family Network (USA)
French Costello & CFC syndrome Website
Italian Costello Syndrome Website

Related syndrome support

CFC International
RASopathies Network
Neurofibromatosis, Inc – USA
Neurofibromatosis, Inc. California – USA
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The Neuro Foundation – UK
The Noonan Syndrome Association – UK

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