FAQ Category: The older person with CS

What is the lifespan of a person with CS?

Two factors make this difficult to answer: first, CS was first described in the 1970s, so there is very little information available on older individuals. Secondly, CS is so rare that it?s difficult to get…

What kind of medical issues might we prepare ourselves for as our children move into adulthood?

Generally speaking, the health issues in adults with CS are similar to those in childhood. Adults with CS often need multiple sub-specialists to deal with their medical issues. There is a long list of problems…