Starting with the Costello Syndrome website http://costellokids.com and the International Costello Syndrome Support Group (ICSSG) in the mid- 1990s, a network of families and professionals has developed into a dynamic partnership. This has facilitated education…

TheFrench association : Association Française dusyndrome de Costello, http://costello.free.fr/ This association expanded to include families with CFC syndrome in 2005. Most of the members are French, but there are also families from other European and…

Yes we do, its called the Costello Syndrome Family Network. You can find their website at http://www.costellosyndromeusa.org/