You have found an excellent first resource here at the Costello syndrome website. As you navigate through the site you will find links to an information booklet for parents, a discussion forum, photographs, conference information…

Costello syndrome is rare, and our understanding of this condition has increased dramatically over the last few years. So there might not be much information on Costello syndrome in many standard paediatric textbooks. Even in…

For family members, we provide: Hot links to additional websites. PDFs of selected medical articles, usually from the American Journal of Medical Genetics, with approval from the Editor-in-Chief, Dr. John Carey, member of the Professional…