FAQ Category: Heart

How common are heart problems?

Heart problems occur in most (three-fourths) people with Costello syndrome.

What type of problems are they?

There are 3 main types: A congenital heart ?defect? (CHD) which involves the heart valves or septum (wall between left and right sides of the heart); Hypertrophic cardiomyopathy (HCM) in which the heart muscle is…

How do you test for them?

Every person with Costello syndrome needs a full evaluation by a paediatric cardiologist. This should include an echocardiogram and ECG (electrocardiogram).In children who are experiencing tachycardia or other arrhythmia, the cardiologist will probably order a…

I have so many questions about the heart. I don’t know where to begin?

It helps to learn about the structure of the heart. Here is a link to the educational website of the Children?s Hospital of Boston : http://www.childrenshospital.org/az/Site480/mainpageS480P0.html And oneto the Royal Children?s Hospital in Melbourne: http://www.childrenshospital.org/az/Site480/mainpageS480P0.html…