From birth, children with CS have feeding difficulties, including a severe aversion to taking solids or fluids orally, and reflux (vomiting after feeding). Some babies require tube or gastronomy feeding (where food is placed in…

This begins with milk, breast or bottle, and also with solid food. Most children have a gastronomy for feeding. Over time, the feeding difficulty does improve, starting at about 3-5 years old. Thereafter, many children…

Most children have a gastronomy for feeding, however most children outgrow the need for the gastronomy tube, but a few continue, because their caloric need is greater than their ability to take in food by…

Many families on the Costellokids listserv have reported that their child loves to eat tomato paste, or slightly spicy foods. Dipping fingers into salad dressing is a common favourite too. Other foods they enjoy are…