Two factors make this difficult to answer: first, CS was first described in the 1970s, so there is very little information available on older individuals. Secondly, CS is so rare that it?s difficult to get…

Generally speaking, the health issues in adults with CS are similar to those in childhood. Adults with CS often need multiple sub-specialists to deal with their medical issues. There is a long list of problems…

Around half of individuals with CS have had delayed or ?late onset? puberty (puberty starts late). Some women don?t have periods at all, or it starts and then stops. Adolescents with CS who are late…

Hearing loss can be divided into conductive deafness (a problem of the external or middle ear, for example related to fluid) and sensorineural deafness (problem of the inner ear). In the general population hearing loss…

Significant hearing loss is uncommon in Costello syndrome, although there are some children who have either conductive or sensorineural hearing loss.