Event Details

Wed July 31 – Sun Aug 4, 2019

Delta Hotels by Marriott Baltimore Hunt Valley
245 Shawan Road, Hunt Valley, Maryland  21031  USA

Costello Syndrome Family Network holds a conference every other year to gather families, caregivers, scientists, researchers and doctors under one roof to share, learn and discuss the latest information on Costello syndrome. The conference is a great networking opportunity and a time to meet new friends and catch up with old ones!  The next conference will be held Wednesday, July 31 through Sunday, August 4, 2019.  Plan to arrive on Tuesday, July 30, 2019 and begin the conference on Wednesday morning with breakfast!  The conference will end early on Sunday.

Delta Hotels by Marriott Baltimore Hunt Valley Website


We encourage you to review our 9-page Conference Planning Packet BEFORE beginning your online registration. If you have questions after reviewing the packet, please contact Sandra Taylor, CSFN Executive Director, at Sandra@CostelloSyndromeUSA.org or 850-832-4055.

2019 Conference Planning Packet is HERE!

Book your hotel room HERE!

The deadline to book your room at Delta Hotels by Marriott Baltimore Hunt Valley at the reduced rate of $129 (King or 2 queens) is June 28, 2019 or whenever rooms run out.


BWI (Baltimore Washington International) is the closest airport to the hotel. You may book a shuttle to/from the hotel at a discounted rate.  See the details in the Conference Planning Packet.

Conference Program – COMING SOON! 

Families can register for the conference HERE!

Earlybird registration ends on May 26, 2019 at 5pm ET.
Earlybird Adult (ages 13 and up) – $120
Earlybird Child (ages 6-12) – $55
Regular registration ends on June 28, 2019 at 5pm ET.
     Regular Adult (ages 13 and up) – $180
Regular Child (ages 6-12) – $85
*There is no charge for the individual with Costello syndrome or for children 5 and under.

Camp RAS (child care for ages 1-17 for Wed afternoon and all day on Thursday) is $55 per child

CS Lounge (for individuals with Costello syndrome ages 18 and up for Wed afternoon and all day on Thursday) is $30 per adult

Fill out the applications for Camp RAS and/or CS Lounge! 

Scholarship Application is HERE! 

Costello Syndrome Ambassador Award and Sibling Champion Award
Help us recognize those who are advocates for Costello syndrome. Click through to the form for more detailed information about these awards and who is eligible and share it with a friend or family member to nominate someone today!  Deadline is May 2, 2019.

Research Application is HERE!

Cost Calculation Table:  Use this table to calculate your costs for coming to the conference and create a savings plan.  Also available as a .pdf file.

Those who cannot attend the conference can order T-shirts and caps HERE!
*Those attending the conference will order shirts and caps when they register at the Registration Link near the top of this page.

Links to Things to Do and See in Baltimore


31 Jul
2019 USA Conference
  • Organized by: Costello Syndrome Family Network
  • Venue: Delta Hotels by Marriott Baltimore Hunt Valley 245 Shawan Road, Hunt Valley, Maryland 21031 USA
  • Phone: (410)785-7000