In order to address the feeding problems some kind of intervention is required. This is, by far, the most chronically difficult issue for our families. Families outside the USA and Canada tell of spending time in the hospital every couple of months or so, with NG (nasogastric) tube feedings and iv.’s for dehydration.

Others feed their children via NG tube at home.

In the USA particularly, most kids have g-tubes (gastrostomy tubes), which go directly through the stomach wall for feeding either by “bolus” (pouring in the formula or meal in one sitting) or timed drip-feeding (requiring a pump, often scheduled for feeding overnight). Some children have a surgical procedure, a Nissen’s fundoplication, performed (where a surgeon puts an extra fold in the oesophagus just above the stomach to help reduce reflux). But for some children, the “fundo” is not appropriate.

Our children tend to need more calories too. "For adults who often watch what they're eating to lose weight, adding calories to food can be a new challenge." ...?

It is not unusual for CS children who are considered to be non-eaters at an early age, to go on to develop a very healthy appetite between the ages of 6-12 years of age.

The best advise is to just hang in there. You will be amazed at what the future will bring.

Please Note

It is important that parents take professional advice from an expert, before undertaking any therapy program.

The therapy ideas on these pages may not be suitable for all.

References
Therapy Skill Builders, a division of Communication Skill Builders, Inc. / 602-323-7500 / Catalog No. 4332 Feeding and Nutrition for the Child with Special Needs / Klein and Delaney