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Welcome to our resorce center
Download and read the launch edition of the United States Costello Syndrome Family Network (USCSFN) Newsletter! This is a PDF file only. Download
Read our may 2006 Newsletter, where you will find information about the support group, including details of the Costello Syndrome family Network, as well as lot of other usefull information about Costello Syndrome. ....Read More
Read our April 2007 Newsletter, where you will find information about the support group, including details of the Costello Syndrome family Network, as well as lot of other usefull information about Costello Syndrome. ....Read More
We have a brochure with a huge amount of information about Costello Syndrome. Although written in 2003, much of the information is as valid today as it was when it was written. About the only thing missing is the information Regarding Gene testing and the HRAS mutation which is the cause of Costello Syndrome. Download the PDF file, or visit the web version from the link to the left. The brochure is the most valuable piece of information you can have when visiting a new doctor, or having a stay in hospital. It can als save you from answering for the 100th time What is CS... Just hand out a brochure.
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