Links

This is a collection of internet links that are both healthcare and non-healthcare related, I hope you find them usefull.

Family Voices
Family Voices is a national grassroots network of families and friends which advocates for health care services and provides information for families with children and youth with special health care needs.

National Association of Councils on Developmental Disabilities (NACDD)
The National Association of Councils on Developmental Disabilities (NACDD) is a national, member-driven organization consisting of 55 State and Territorial Councils. NACDD places high value on meaningful participation and contribution by Council members and staff of all Member Councils, and we advocate and continually work towards positive system change on behalf of individuals with developmental disabilities and their families.

Directory of State Councils on Developmental Disabilities
Councils on Developmental Disabilities were created by the Developmental Disabilities Act (DD Act) in 1970. Councils are located in every State and Territory and represent a Federal-State partnership in developing futures for and with people with developmental disabilities and their families. Councils are governed by volunteers who are appointed by Governors. More than 60% of these volunteers must be people with developmental disabilities or family members. In this way, the “customers” of the service system direct the Council’s activities.

National Disability Rights Network (NDRN)
The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the United States.

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State Protection and Advocacy Systems and Client Assistance Programs
The Protection and Advocacy (P&A) System and Client Assistance Program (CAP) comprise the nationwide network of congressionally mandated, legally based disability rights agencies. P&A agencies have the authority to provide legal representation and other advocacy services, under all federal and state laws, to all people with disabilities (based on a system of priorities for services). All P&As maintain a presence in facilities that care for people with disabilities, where they monitor, investigate and attempt to remedy adverse conditions. These agencies also devote considerable resources to ensuring full access to inclusive educational programs, financial entitlements, healthcare, accessible housing and productive employment opportunities. CAP agencies (many of which are housed within P&A offices) provide information and assistance to individuals seeking or receiving vocational rehabilitation (VR) services under the Rehabilitation Act, including assistance in pursuing administrative, legal and other appropriate remedies.

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Parent to Parent-USA (P2P-USA) is a national non-profit organization committed to assuring access and quality in Parent to Parent support across the country. About Parent to Parent - USA. Parent to Parent programs provide emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained 'Supporting Parent'. (FAQ has detailed descriptions of Parent to Parent support)

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