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Claudia Garcia |
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| hola! tengo una hija de 7 anos con este diagnostico, agradeceria me escribieran para compartir informacion | 9 November 2008 06:29am Guadalajara, Jalisco. |
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erika |
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| hola mi nombre es erika diaz ya antes habia dejado un mensaje aki y quisiera saber si puedo contactar a alguin via telefonica para saber mas sobre este sindrome ya que tengo un hijo de 5 yrs old con este sindrome. Hello my name is erika diaz and y have a child with CS if some people wants to talk with me by phone or email my ph 2546879987 thanksssss | 23 October 2008 11:30pm itasca texas |
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Brian |
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| This is a fantastic site; I am blessed to have a child in my special education class that I work with who has Costello's. Fantastic resource for absolutely special children. | 20 October 2008 04:50am New York, NY |
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Betty |
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| Hello i have a daughter who is four and she has costello syndrome. She is going to start kindergarden next year and i'm really nervous about it. i really don't know what to expect. | 16 September 2008 08:43pm Fort. lauderdale, Fl |
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Nancy |
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| I am checking out the website, due to the mention by the geneticist of this being a possible diagnosis for my 14-year-old son, Damien. We have investigated so many storage diseases that up until this year, I had gotten tired of looking and just focused on his many needs, as well as the needs of my other children. We'll see!
| 21 August 2008 04:02pm Wellington, Florida |
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Christina Smith |
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| This site has been a wealth of help to our family. Our daughter's geneticists say that they believe she has this syndrome, but they cannot test because the genetic testing for Costello is unreliable. Thanks for the update in genetic testing! | 18 August 2008 01:54pm North Carolina, USA |
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chantal leblanc |
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| bonjour! ma fille malie qui à 3 ans à le cs... ma plus grande préocupation est de savoir quand elle va manger... elle est gavée et nous avons trés hâte qu'elle mange | 15 August 2008 01:56am québec, canada |
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Susan Schaeffer |
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| Josephina,
I am the mom of Matt, who is 19 years old and has CS. I don't usually go the the CostelloKids website, but just happened to be browsing today. I am right across the bridge from you in Cinnaminson, NJ. I would love to talk to you. I you'd like, give me a call at my home phone (856) 829-1312. If I am not at home, leave me your number.
Take care,
Susan | 4 August 2008 04:58pm Cinnaminson, NJ |
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josephina |
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| hello everyone my son is khalil and he 2 months old and has cs Iam having a hard time dealing and understanding cs please i would like to talk to people who have children with cs for support and info.thank you | 28 July 2008 11:23pm philadelphia pa |
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webmaster |
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| Hello and welcome to the CostelloKids Guestbook.
Due to a technical problem the Guestbook has not worked correctly for the past few months. We are sorry for any problems that may have caused you in posting your messages. The problem has now been fixed, and we look forward to reading your messages.
Take care | 14 July 2008 01:43am Manchester England |
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Karrin Brooks |
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| Hi my son, whom is now three has undergone test after test since birth we are now to met with a genetist for a second time at which I am going to question costellos syndrome. Our meeting is next week and I would love to talk to any NZers prior to this meeting with other ideas for questions to ask. I can be contacted at mardimus@o
rcon.co.nz
| 8 May 2007 03:38am New Zealand |
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Dario, Caroline und Paolo Fava |
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| Hallo an alle, Dario geht es Wunderbar (erste Fall in der Schweiz.
Wir freuen uns auf Informationen! | 2 May 2007 05:02pm Buchrain, Luzern, Switzerland |
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Kimberly |
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| WOW!! I just learned of Costello's syndrome also, through a biology project! These children are AMazing! and I hope you can see the Powerpoint
! theirs a page for this website! thanks for all the help, Costello Kids are in my prayers! God Bless | 27 April 2007 06:35am U.S |
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anoynomous |
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| are there any charitable organizati
ons for costello research? | 26 April 2007 02:42pm pennsylvania |
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Pepper |
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| Just wanted to let everyone know that Jaylon is doing well. He is doing great in school and the whole school loves him. We are still planning on attending the conference
. Hope to see ya'll there. | 10 April 2007 00:15am TEXAS |
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Samantha |
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| To Betty: We live in Tallahasse
e, FL. Our son is now nearly six and was diagnosed with CS about two years ago. You can contact me at sdellosso@
gmail.com.
| 3 April 2007 07:45pm |
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Annelise |
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| I just recently found out about CS through a biology project, and am now touched by the thoughtful
ness that this support group offers. It's been hard to research it, and see how these kids live, and yet they're greatful for all they have. Keep up the great work, God bless | 28 February 2007 05:56pm |
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Chelsea |
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| My younger step-broth
er has CS and it makes everyone who has been around someone with CS it really puts life into perspectiv
e. Before I have met my step-broth
er I was a horrible kid, i lied, stole, and cheated. But when i met him and found out what was wrong with him i really began to appreciate having a semi-norma
l life and being healthy. So if anyone cares to hear more e-mail me. | 23 February 2007 05:17pm |
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Nick Saler |
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| Every one is in my prayers | 22 February 2007 00:03am |
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betty |
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| hi, i have a beautiful two year old daughter that was recently diagnosed with Costello syndrome. i would like informatio
n and support from anyone who lives in Florida. thank you | 18 February 2007 01:05am |
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janine smith |
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| Leonie Bence, Now I know what my good friend has. She is also in her 30's. Any ideas what to expect in the future? Thereisnot to much info on adults. She is currently in a group home and I would like to be there for her if she needs me. Thanks Janine | 15 January 2007 00:02am |
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Andrea Adamsky |
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| My son Zackary is 14 months old and was recently diagnosed with Costello's
. We're from Pennsylvan
ia, I would like to talk to anyone else from PA you could reach me at sunny@icon
tech.com your website is amazing thank you!! | 5 January 2007 02:25am |
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Brandy Weber |
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| HI Colin and our CS friends. Just wanted to let you all know that we are doing good. Michael is stll recovering form his Chiari Surgery but everyday he is a little better. Colin, the new site looks great. Just wanted to let you all know we are always praying for the CS Angels! Love,Brand
y mom to Michael,CF
C,7 years old | 17 December 2006 06:33am |
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mavis castledine(aliasAUNTY BUBBLES) |
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| Hello every one thought i would let you all know yesterday i was fortunate enough to be invited to NO10 Downing street.london to the prime ministers home .It was the Kirsty charity party.It was there i met a Delighful little girl called Helaina Stone and her very proud daddy Colin. Well Helaina i just had to let you know darling you really touched my heart .I am a proffesional face painter and it would give me great pleasure to offer my face painting at any of your functionsthere would be a small donation for each face which would go straight to the costello kids fund i sincerely hope i can be of some use to any of you as regards making money for the costello kids hope to meet many more of you in the near future .Once again Helaina i am so proud to have met such a brave little angel as yourself lots of love Aunty bubbles.. | 7 December 2006 08:43pm |
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Cindy Spangler |
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| I haven't checked in for about a year, now. The website looks great! To the Bostedo family, my heart is with you tonight, and you are all in my prayers. Feel free to write to me at cindyandbob.spangler@verizon.net if you want some support from a family who has had a similar loss. You can read John-John's story on the website. | 4 December 2006 03:15am |
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