Welcome to the International Costello Syndrome Website.
We’re an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children.
But most of all we provide a support network through which families can share there own experiances and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may supprise you.
Want to know more about Costello Syndrome click on an image below and let Erin, Jill, Laure and Kristin tell their own story.
Want to know more about our Costello Syndrome Conference Click on the image below, see the fun and meet some of our members.
Helaina Stone - was a 2007 Child of Courage winner click on an image below and watch the News Video
