The International Costello Syndrome support group is holding its first UK Conference in London on the 9th of September 2010. For more information please visit the conference page for more info
We’re an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Our aim is to gain a to better understanding of Costello Syndrome identify the best practices in treatment for our children.
But most of all we provide a support network through which families can share there own experiances and support each other through a mutual understanding. Whatever you learn from this site.. "....don't stop asking questions!" The answers may supprise you.
